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Riksföreningen Osteoporotiker ROP

Contact Details
General Information
Board
Staff
Membership
Services Provided
Activities
 

Contact Details

Office address Riksföreningen Osteoporotiker ROP
Swedish Osteoporosis Patient Society
Box 12153
402 42 GÖTEBORG
Sweden
Phone +46 86 04 24 66
Fax +46 86 04 61 64
E-mail osteo@telia.com and lars.hagenklev@swipnet.se
Website http://www.osteoporos.org
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General Information

Geographical area covered Sweden
Year of foundation 1995
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Board

Chairman Lars Hagenklev
President Lars Hagenklev
Vice President Kristina Andersson
Treasurer Britt Odsvik Hofmann
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Staff

Representative at IOF Berndt Söderborg
Staff members Lars Hagenklev, Kristina Andersson, Britt Odsvik, Olof Wennås, Elisabeth Fleetwood, Gun Lundgren, Dan Mellström, Lena Persson, Berndt Söderborg, Ola Wessmark, Ewa Winberg
Number of staff members 11
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Membership

Membership categories Patients, med. Doctors, Phycisists, nurses etc
Number of members 1000
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Services Provided

Patient support groups Yes
Education materials for public Yes
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Activities

Science/medical Occasional participation in conferences, etc., Osteoporos-Nytt also distributed to practitioners and healthcare centers
Support local, regional groups Five, and increasing
Lobbying Lobbying hospitals, politicians and health authorities
Public awareness and education Folders & pamphlets, "Osteoporos-Nytt", quarterly newsletter;
Frequent meetings all over the country, exhibition material (posters, pamphlets, overheads), occasional interviews on TV/radio, advice by letter and tel. contacts with practitioners
Fundraising, Finance and administration Funds from donations (to some very small extent) and commercial corporations, membership fees, funds from various companies other than pharmaceutical
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